Siena’s 5K PWS Walk 2014 (5th Annual!!) October 17, 2015

What?

The purpose of this walk is to raise money for Siena’s Special Needs Trust. This event is open to anyone who wishes to raise awareness of Prader-Willi Syndrome and support Siena Schoenberger. All proceeds directly benefit Siena’s Special Needs Trust, this is not a non-profit event and does not benefit Siena's HUGS Foundation. Siena's Trust helps pay for medical needs, therapies, physical activities, and various other items that help Siena thrive.

Where?

South Hills Park (Orchard Pavilion)
1100 South Lincoln Avenue
Lebanon, PA 17042

When?

Saturday, October 17, 2015 (rain or shine)
9:00 AM: Registration
10:00 AM: Walk starts

Cost?

WITHOUT SHIRT : $10 for participants over 10 years old
WITH SHIRT: $25 ages over 10 years old, KIDS SHIRTS AVAILABLE for $10

ONLINE PRE-REGISTRATION ENDS October 7th if ordering a T-Shirt and October 15th if not ordering a T-Shirt!
** there will only be a limited number of shirts available to participants who do not pre-order

DAY OF WALK REGISTRATION: $15 for participants over 10
**free for children 10 and under

Click here to register.

General Information:

Every registered walker will receive complimentary snacks and beverages, as well as ONE FREE raffle ticket, which can be used to win raffle prizes. Additional raffle tickets will be available for purchase.

If you have any questions, please contact:
Jamie Schoenberger | 610.457.5996

What is Prader-Willi Syndrome?

PWS is a disorder of chromosome 15, Prevalence: 1:12,000- 15,000 (both sexes, all races) Major characteristics: hypotonia, hypogonadism, hyperphagia, cognitive impairment, difficult behaviors. 4 year-old, Siena, was diagnosed with PWS in March 2011. Raising awareness about Prader-Willi Syndrome will help people understand this genetic disorder and could possibly bring us closer to finding a cure!! For more information about PWS, please visit www.pwsausa.org or www.fpwr.org.